Coming home soon...I hope!
One of the nurses told me that Noah is getting to the point now to where there isn't anything they can do at the hospital that we can't do at home for him. Hospitals send babies home on oxygen and feeding tubes, machines that tell them if they stop breathing etc. every single day. Why won't they send Noah home? On Sunday during the morning rounds at the hospital, the nurse practitioner said that they would like to have some tests ran based on what a developmental and genetics doctor suggest that we run. She wanted to have them done so that we could get Noah home as soon as possible. My thought...YEAH, YIPPEE...Get him the heck home ASAP people! So, this morning they called the genetics and developmental doctors. The genetics doctor had a few tests they wanted to run and the developmental doctor is suppose to be there tomorrow to see him. I'm sure she will have some tests ran, one of which I'm hoping is a swallow test. I don't know if they will find anything out or not, but I just want to know what is wrong with my kid and why he won't eat like a normal kid! The developmental doctor will actually make the decision on whether or not he should or should not take the feeding tube home and be released from the hospital. (From what I understand, this is her job anyway) I have experience working with feeding tubes, although just g tubes, not the kind he is on...but they are all very similar in how they work. Hopefully I'll have more information in the next day or so. I'm just ready for Noah to come home. I'm burnt out from running back and forth, Leon is really wanting to be home more, I'm sure my parents are starting to get worn out some, and I know Skip and I are exhausted from running constantly...day in and day out. I hope we find out something and can be home by the end of the week, but I don't know how long the tests will take to get the results back either...hopefully not long at all! I know the genetic ones they said could take 2 weeks to over a month to get back, but I'm more curious about the developmental ones honestly...they determine what happens with Noah as far as leaving or staying...hopefully leaving VERY soon!
2 Comments:
At 8:34 AM ,
Paige said...
We are still praying daily for him to come home! Even if it's with a feeding tube, I'm sure he (and you) will do so much better if you can just get him home. Thank goodness they are running so many tests to try and figure this thing out though. Aside from the feeding issue, at least you know everything else about this little boy is as healthy as can be because they have tested it! Good luck with the newest ones...maybe you'll finally get some answers.
At 11:50 PM ,
Tomika said...
I know these feelings all too well. Hang in there. The NICU will soon only be a memory.
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