Improvement day by day

Noah is improving everyday. Today his oxygen has been around 35% towards the end of the day. He's comfortable there and resting nicely so they are going to leave it there until tomorrow when the doctors come in and do their rounds to decide what each baby's goal will be for the day. Today he started feeding through a tube which for now is fine with me because my milk isn't in yet for him to have what he really needs. I am continuing to pump and hopefully it comes in very soon. I am able to stay overnight in the NICU with him which is going to be nice once it does come in and he is able to try to breastfeed. He is quite the sucker on his pacifier so I'm sure he won't have a problem latching on or anything...I'm hoping. I did tell them I'd rather him be fed through the tube until I get a chance to at least try to breastfeed so he won't reject it and take directly to the bottle...if I can help it. Leon got started on the bottle nipple and refused anything else. His puffiness is down a lot. To me it looks normal, but I'm not sure what the doctor's opinion of it is. He has lost weight now. He's finally urinating all of the excess water out that he needed to be doing a couple of days ago. If he continues to do well with the weaning of the oxygen I'm hoping he will be completely off of it by tomorrow or Monday. Monday they have a couple of bigger tests they are going to do. One of them is teh echocardiogram and the other is a CT Scan to make sure there isn't any neurological issues that may be wrong with him. They are taking all the precautions and testing everything to find out what exactly happened in utero or during the birth to see why he had such a hard time. I'm glad he's doing so well though. It makes me a little more comfortable. We are actually at home now. I wanted to come home to get a night in with Leon at home. Monday morning Leon has his 3 year old checkup and my mom is taking us to since I can't really drive right now. I will stay at their house tomorrow night just so we don't have to get up as early and then we will go to the hospital afterwards. Leon is doing well with all the back and forth stuff going on too. He said tonight he wanted to go to grandma and grandpa's house, but Skip was home so I wanted him home too. Tomorrow night we will both be gone, and after that, I may be staying at the hospital at night a lot more. We called tonight to check on Noah and he's doing well...just as he was during the day. We will find out more tomorrow after the doctor's do their rounds. I can't wait to see him again! The hardest thing I've ever had to do is leave my child behind somewhere that I'm not knowing there is nothing I can do for him there. That just breaks my heart. Leon has seen his fair share of tears from me the last couple of days, and he knows not to push any more buttons after that for a while. :) He always comes up and gives me hugs and kisses and says, "mommy, it will be ok." I'm glad I have such a sweet child. :)

On another note, Leon had his checkup Tuesday at the ENT. He has a followup on Friday. His tubes don't have the proper air flow that they should. He is on different ear drops now until he goes back on Friday. He may have to go back in and dig out all the ear wax etc that is blocking the tubes and possibly have to take out the tubes and replace them. I hope it doesn't come down to that. Right now, that is the last thing I want is another medical bill and another child having issues. I'll update more on that later too.